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A UK-wide survey of follow-up practices for patients with high-grade glioma treated with radical intent
journal contribution
posted on 2023-06-07, 16:01 authored by Susan Catt, J.L. Anderson, A.J. Chalmers, Lesley FallowfieldLesley FallowfieldHigh-grade glioma profoundly affects patients and their families. The best ongoing care for patients completing radical treatment is uncertain. To address this issue a UK-wide audit surveying the follow-up practices of multidisciplinary cancer teams was conducted. An online survey package was used with a paper version available. Of 102 clinicians approached 86 replied, a response rate of 84%. Three-monthly outpatient department appointments led by an oncologist and a specialist nurse were the norm, but more controversially, some centres conduct joint clinics with the whole neurosurgical/oncology team present or available. Nurse-led telephone follow-up in place of hospital visits is uncommon. Regular scanning is conducted despite the clinical benefits being contentious. Access to a range of allied services providing supportive care is considered, but the actual levels of need and the efficiency with which they are delivered require further investigation. The picture of UK follow-up practices revealed by this survey demonstrates that research is now needed to determine what preferences patients and families have for follow-up and their satisfaction with these.
History
Publication status
- Published
Journal
Journal of Evaluation In Clinical PracticeISSN
1356-1294Publisher
Blackwell PublishingExternal DOI
Issue
1Volume
17Page range
1-6Department affiliated with
- Sussex Health Outcomes Research & Education in Cancer (SHORE-C) Publications
Notes
Accepted for publication 13 May 2009 and e-published in 8th December 2010 ahead of print version in 2011Full text available
- No
Peer reviewed?
- Yes