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A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers

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Version 2 2023-06-13, 15:31
Version 1 2023-06-10, 02:14
journal contribution
posted on 2023-06-13, 15:31 authored by Ben HicksBen Hicks, Sanna Read, Bo Hu, Raphael Wittenberg, Amanda Grahamslaw, Anomita Karim, Evelyn Martin, Eleanor Nuzum, Jacob Reichental, Alice Russell, Elaine Siddle, Pete HarrisPete Harris, Eleanor MilesEleanor Miles, Rotem PerachRotem Perach, Jennifer Rusted, others
Introduction COVID-19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life. Methods In a UK cohort study, pre- and post-pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life. Results Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life. Discussion Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.

History

Publication status

  • Published

File Version

  • Published version

Journal

Alzheimer's and Dementia: Translational Research & Clinical Interventions

ISSN

2352-8737

Publisher

Wiley

Issue

1

Volume

8

Page range

1-14

Article number

a12236

Department affiliated with

  • BSMS Neuroscience Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2022-01-11

First Open Access (FOA) Date

2022-05-03

First Compliant Deposit (FCD) Date

2022-01-11

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