Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.pdf (1.19 MB)
Consensus statement on public involvement and engagement with data intensive health research
journal contribution
posted on 2023-06-10, 01:06 authored by Mhairi Aitken, Mary P Tully, Carol Porteous, Simon Denegri, Sarah Cunningham-Burley, Natalie Banner, Corri Black, Michael Burgess, Lynsey Cross, Johannes van Delden, Elizabeth FordElizabeth Ford, Sarah Fox, Natalie Fitzpatrick, Kay Gallacher, Catharine Goddard, othersThis consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.
History
Publication status
- Published
File Version
- Published version
Journal
International Journal of Population Data ScienceISSN
2399-4908Publisher
Swansea UniversityExternal DOI
Issue
1Volume
4Page range
1-6Article number
a586Event location
WalesDepartment affiliated with
- Primary Care and Public Health Publications
Full text available
- Yes
Peer reviewed?
- Yes