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Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study

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posted on 2023-06-08, 21:30 authored by Linda Clare, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Catherine Henderson, John V Hindle, Ian R Jones, Roy W Jones, Martin Knapp, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer Rusted, Nada M Savitch, Jeanette M Thom, Christina R Victor
Background: Enabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers. Methods/Design: Over a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth. Discussion: The findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.

Funding

Living Well With Dementia; G1362; ESRC-ECONOMIC & SOCIAL RESEARCH COUNCIL; ES/L001853/1

History

Publication status

  • Published

File Version

  • Published version

Journal

Health and Quality of Life Outcomes

ISSN

1477-7525

Publisher

BioMed Central

Volume

12

Page range

164

Department affiliated with

  • Psychology Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2015-07-09

First Open Access (FOA) Date

2015-07-09

First Compliant Deposit (FCD) Date

2015-07-09

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