SHTI-294-SHTI220538.pdf (186.22 kB)
Understanding public priorities and perceptions of the use of linked healthcare data in South East England
journal contribution
posted on 2023-06-10, 03:49 authored by Elizabeth FordElizabeth Ford, Kathryn Stanley, Melanie Rees-Roberts, Sarah Giles, Katie Goddard, Jo ArmesThe counties of Kent, Surrey and Sussex (KSS) in South East England are creating anonymized, linked databases of healthcare records for audit, service planning and research for the first time. We consulted with 79 citizens from KSS in 5 deliberative focus groups, asking about perceived benefits and concerns regarding these new data assets. Participants hoped the linked datasets could be used for joining up care and information, improving efficiency, and improving healthcare provision, but were concerned about missing and inaccurate data, data breaches and hacking, use of data by profit-making organisations, and stigma and discrimination. Findings will be used to underpin governance and engagement strategies for integrated datasets in KSS.
History
Publication status
- Published
File Version
- Published version
Journal
Stud Health Technol InformISSN
0926-9630Publisher
IOS PressExternal DOI
Volume
294Page range
594-598Event location
NetherlandsDepartment affiliated with
- Primary Care and Public Health Publications
Full text available
- Yes
Peer reviewed?
- Yes