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Understanding the quality of life of family carers of people with dementia: development of a new conceptual framework

journal contribution
posted on 2023-06-09, 15:18 authored by Stephanie DaleyStephanie Daley, Joanna Murray, Nicolas Farina, Thomas E Page, Anna Brown, Thurstine Bassett, Gill Livingston, Anna Bowling, Martin Knapp, Sube Banerjee
Background Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia. Methods We studied family carers of people with dementia and staff working in dementia services iteratively using in-depth individual qualitative interviews and focus groups discussions. Analysis used constant comparison techniques underpinned by a collaborative approach with a study-specific advisory group of family carers. Results We completed 41 individual interviews with 32 family carers and nine staff and two focus groups with six family carers and five staff. From the analysis, we identified 12 themes that influenced carer QOL. These were organised into three categories focussing on person with dementia, carer, and external environment. Conclusions For carers of people with dementia, the QOL construct was found to include condition-specific domains which are not routinely considered in generic assessment of QOL. This has implications for researchers, policy makers, and service providers in addressing and measuring QOL in family carers of people with dementia.

History

Publication status

  • Published

File Version

  • Published version

Journal

International Journal of Geriatric Psychiatry

ISSN

0885-6230

Publisher

Wiley

Issue

1

Volume

34

Page range

79-86

Department affiliated with

  • BSMS Neuroscience Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2018-10-01

First Open Access (FOA) Date

2018-10-01

First Compliant Deposit (FCD) Date

2018-10-01

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